To Our Cause

We have started our fundraising initiative for 4H Leukodystrophy research!

Over the last year we watched how this disease has taken Alexis’s running from her. We’ve watched how it’s affected her balance and walking. The only way we can survive this is by being in the moment. Enjoying the memory making.

Today we begin to focus on the tomorrow. The science we need for a treatment. The interest we need for pharma to recognize us and our cause. Today we fight and ask the world to help us stop this progression.

God is so good.

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Our Research Partner

Our mission is to accelerate the pace of discovery and ultimately find a cure for 4H Leukodystrophy. For that reason we have chosen to partner with the Yaya Foundation. Founded in 2018, they have paved the way to bring awareness to this rare genetic disorder that affects the nervous system. For more information on the progress of research, visit the Yaya Foundation page.

Yaya foundation